Life has settled down for us a bit. Maggie has become more herself again, which we are happy to see. On Monday we went to see the nutritionist at Dayton Children's, after receiving a referral from Maggie's pediatrician. The nutritionist told us that we need to offer Maggie all table foods in hopes that she will begin to take more food. They also gave us some samples of high calorie drinks and gave us a list of high calorie foods. I still am a bit skeptical about the whole thing. The way the nutritionist spoke made it sound like it was so easy and that Maggie would just take the food. The thing is, we've been doing this (table foods) for quite awhile and she still isn't taking any food of substance. She plays with it and picks at it, but doesn't have much interest in putting it in her mouth. I don't see how it will change just by us going to the nutritionist and receiving guidance. We will see though, whatever we have to do, we will.
We go back to the hospital tomorrow to receive a monthly RSV shot. Maggie gets two shots, one in each leg. Then on Thursday we go back in for low dose Methotrexate. The hope is that Maggie's counts won't drop too low because if they do, family traveling will not be allowed. With the low dose chemotherapy drugs, the doctors try to regulate the dosages to keep Maggie's ANC low, around 1000. Being that she has just begun the low dose drugs, it might take a couple of rounds in order to regulate the dosages.
Thank you all for your continued thoughts and prayers.
3 comments:
Whitney,
As for the nutritionist...I think I'd be comforted in the fact that you're already offering and doing what she suggested ("yeah, I am doing this right!") and encouraged that maybe something new will whet Maggie's appetite sometime. I can imagine that it can be maddening to have so many people telling you what you should be doing, but ultimately--you're the one with the all around knowledge of what your girl needs, wants and likes. You and Andy are the best people to decide for Maggie because you know her best--and that's what being a parent is about! I think you're doing great taking care of this sweet baby! Keep up the good work--she's so worth it! :)
Love and lots of hugs!
Elisha
Glad to hear things are settling down for you all.
I agree with Elisha. You're her parents and you know and love her best. Don't doubt yourselves.
Debbie M.
I can get you the phone # of a good dietitian if you want a second opionion.
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