We visited the clinic yesterday to find out how Maggie's counts were fairing. They were in fact rock bottom. Her ANC is at 0 and her white count is at 200. Her hemoglobin is getting low, but not transfusable yet. Her platelets however were at 18,000 and were needing a transfusion. So, thankfully they had some in stock and we were able to get them yesterday evening along with our clinic visit (versus coming back today).
Maggie has been a bit irritable since Wednesday. She had her monthly RSV shot, which seemed to scare her quite a bit and from then on, her demeanor has changed. She has stopped sleeping during the night and woke up every hour on Wednesday evening and every 20 minutes last night until I finally brought her into our bed. She then managed to sleep for about 2 hours at a time.
Maggie's temperature has also been a little more elevated-- in the 99's. We worry that it will get higher which would then mean that we would have to go to the ER and eventually become inpatient due to her low counts. We'd like to avoid that if at all possible. I'm hoping that her elevated temperature is a result of some teething??? Who knows, that was always the joke before when she'd get fevers.
Please pray for Maggie that she will not get any infections during this vulnerable time-- that she will stay clear of mouth sores and the cancer will be completely gone from her body forever.
Please also pray for another child, Alana Bryan, who's blog I have been following-- http://www.caringbridge.org/visit/blessedangelalana. She was diagnosed with infant ALL about a month after Maggie was diagnosed. She has just relapsed. It reminds me how scary this disease really is and how we can never feel completely safe
3 comments:
Praying for Maggie, Alana, all who are suffering.
Love. Great Aunt Phyllis
As bad as the counts are, it's part of the fight against the cancer and so it has a purpose. That knowledge doesn't make you less tired or worried, but hopefully can be something to cling to at times like this.
Praying for you all as always.
Debbie M.
Whitney, I have prayed daily for you and your family since I heard about your little Maggie's struggles. My heart goes out to you. Marcia Ernst (Gwen's mother-in-law
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