Steroid week

We are in the middle of steroid week and it is a bit more challenging than the last few. Maggie has been incredibly whiny and says "mama mama mama" constantly throughout the day. She feels pretty cruddy, I think. We had some vomiting issues on Tuesday so we have been medicating her with Zofran around the clock. Her appetite is low, yet she is very thirsty as she is always asking for juice.

I think part of the reason for a harder week for us is that Maggie had a spinal on Monday with intrathecal chemo. This must cause her much more discomfort than just having the steroids. They also increased her dose of Vincristine by about 30%. Though I haven't seen any side effects from this chemo drug, it might be causing her to feel more agitated as well.

We have been giving Maggie Benedryl for bedtime to help the nausea overnight, but also to help her to sleep. We have skipped working on getting Maggie to sleep in the big girl bed until after this week. It's just not a priority. She is refusing to nap in her bed now, so the steroids are definitely affecting her sleep. Hopefully the Benedryl will continue to override this and we will be able to get the sleep needed in order to manage this dreadful week.

Please pray that Maggie will feel better soon--these horrible side effects will go away quickly. Please also pray for patience for us as we try to remember that this is not our Maggie, but the drugs. Also, please pray for a special little boy, Lincoln, who we've talked about before. His family has not received good news. Please pray for a miracle with this precious baby boy.