We are back in the Almost Home Unit this morning for a scheduled spinal with chemo and then Maggie will begin 5 days of steroids. We hope that this next dose of steroids will not affect Maggie as much as the previous dose.
We've still been struggling with the sleep issue. The last two days have been the worst they've ever been. Maggie will not sleep by herself and wakes up about every 20 minutes or so to nurse back to sleep. I don't know what has happened to make it this bad.
Our plan was to come home from the hospital today with something to help this sleep problem, but it appears that Dr. French, Maggie' primary doctor, is on vacation, so we will be unable to get any meds until possibly next week. I don't know how we will survive another week, especially on steroids, but hopefully she'll turn around and start sleeping better.
Please pray that Maggie's spinal fluid will still remain clear of leukemic blasts, that the steroids will not affect her personality, and that her sleep will get better. Thanks so much.
4 comments:
I am praying. Wish I could do more, but God is in control and he will get you through this and provide the help you need in forms you can use.
Debbie M.
would Maggie be able to use a pacifier?
Hey Whitney,
Give her a teaspoon of benydril. If that is okay with her doctor, it works for us. Jay was at Children's Friday with a fever of 106.7 and he is still fevering at 105. We haven't slept much...but benydril seems to work for a few hours.
As always, you're in my thoughts and prayers.
Great Aunt Phyllis
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