We went into the clinic this morning to check Maggie's counts for her upcoming high-dose chemo scheduled for Monday. Her counts were great and she is on schedule for chemo on Monday. In the past, this chemo has been given inpatient, but we have been given permission to have it outpatient. We will spend all day in the clinic Monday while she receives the 2 1/2 hour infusion and then wait for 4 more hours while she receives the rescue drug, Mesna, to protect her kidneys. As long as she tolerates this all well, we will continue the rest of the week doing the 2 1/2 hour infusion in the clinic and finish at home with the 4 hour Mesna.
We are happy that we can stay home for this final high-dose chemo. Hopefully there will be no complications and we can maintain as much of a "routine" as possible. Please pray that our final high dose chemo will do its job without any of its side effect-- nausea, vomitting, and fevers.
On another note, Maggie has gained some more weight, thankfully. She is up to 22 lbs. 6 1/2 oz. Her goal weight is 23 lbs., however, before she can get rid of the tube, she'll have to be able to eat on her own.
Maggie did have a speech therapy appointment on Wednesday. The appointment did not go well. She cried the entire time and so no therapy was given. Her appointment was at 8:30 in the morning and Maggie was still receiving her feeding from her feeding tube, so she was not hungry. We are hoping that insurance will cover further appointments as it is very necessary that Maggie receive help. Maggie will put food into her mouth, but be unable to swallow it. So there appears to be some aversion to swallowing, textures, or something related to a motor problem. Please continue to pray that she will gain interest and be able to eat on her own.
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