Update

Yesterday was a pretty rough day for us--Andy at work and me and Maggie at home. Maggie continues to have diarrhea, mainly at night when we have tried to put her down. I am getting a little worried that these enzymes just might not work. Maggie wanted to go to sleep last night around 8:30, but before it was all said and done she was asleep with the help of Benedryl at 12:30. It was a long night balancing between her request for hot dogs and green beans and going poo in the potty. Once I did get her down, I was up every hour until 5:00 am changing a dirty diaper. It was very tiring and frustrating that things are not slowing down.

Maggie had her labs drawn yesterday and today, both showing her potassium at 3.4 (it was 2.4 when we left the clinic Monday). In talking to the nurse, as long as her diarrhea slows, tonight will be her last night of fluids. I was hoping that the numbers would be a bit higher, considering she's on fluids, but I guess her body is slow to responding and she is still losing a lot of potassium in her diarrhea.

I noticed yesterday that the steroids still seemed to be affecting Maggie. She was very touchy in that if something didn't go her way, she would immediately start screaming. An example of this was when we decided to go out. It was a beautiful day, mid 60's and so I decided we would go to the Greene, our favorite hang out on nice days. I dressed her like it was winter; winter coat, winter hat and gloves just in case (I had forgotten what the 60's felt like after being so cold lately). When we stepped outside and felt the warmth I took Maggie's hat off and she was very mad. So, she ended up dressed for winter and probably sweating, but she was happy. I guess that's all that matters. So, the day was quite challenging and from the moment I woke up to the time I went to bed I spent 5 minutes by myself, all the while hearing Maggie calling my name. It was a long day and one that didn't get any relief, even once everyone was asleep.

Maggie is doing better today as she has had less tantrums. I just finally got her to take a nap by herself, something that hasn't been done since the Sunday before last. I am hoping the steroids will rid her system soon as I think they have also caused all of this diarrhea, behavior changes, and sleep changes. It will be nice when Andy and I can sit down together again for a few moments to just relax while our baby is sleeping. You need some downtime every now again, right?

Please pray that these enzymes will be effective and that they will stop Maggie's diarrhea and that she will start to put on some weight. I weighed her today at the clinic and she was up to 21 lbs. 7 oz. with a bit of a wet diaper, so there is improvement, but most likely from fluids. We all just want some relief soon.