While Maggie has been allowed to eat while on TPN, her appetite has decreased quite a bit. Before TPN, Maggie ate constantly because she wasn't absorbing anything. As she has continued TPN, I have noticed her gradual shift to eating much less. While I definitely don't know what "normal" is due to our always having eating issues (whether she didn't eat at all during the heavy treatment to eating constantly while having profuse diarrhea), I am guessing that she might be not taking enough in now. Who knows though.
The other issue with her nutrition is that her pre-albumin (measures her nutritional state) is still pretty low. It fluctuates from week to week, but the last count was below normal. Dr. Mezoff believes that Maggie's protein in her body was so depleted that she has little reserve, therefore she must build it all back up, which I guess will take some time. For this, they have also changed the amount of protein that is in her TPN by increasing it.
We will see how it all goes, but we continue to be encouraged by Maggie's disposition and weight gain. The TPN is our miracle drug right now to getting her back on track. Hopefully soon enough her diarrhea will be completely gone and her nutrition will be at a perfect state.
7 comments:
How encouaging, Whitney! Maggie looks soo good in the pictures, I can tell she has put on some lbs as well!!! You guys all have a very Merry Christmas!
Great News! What a wonderful Christmas present for us all.
Love and prayers always.
Great Aunt Phyllis
Your last posts have been so full of answers to prayer. Maggie looks wonderful...thanks for the pix.
Wishing you Christmas blessings of peace and joy that extend through the year ahead.
Holiday wishes from Dalton,
Kathy
Hey guys,
Glad to hear Maggie is holding steady with the weight gain!! Merry Christmas! We love you!
Nat and Andy
Merry Christmas Bixler family!
The Miyashitas
Mark Monica Max and ^^Lydia^^
Orrville, OH
I love the photos of Maggie! She looks so much like Andy. Those smiles must really light up your hearts, so beautiful!! She really looks so happy. It's so wonderful that you had all of that time with your families and that she was well enough to play with her little cousins. Thank God! We're keeping up our prayers. God bless you all and Happy New Year!!
Christina
How did the holidays go? Thinking of you all. Jess
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