This is the last day for our 5-day chemo trip to the hospital. Maggie is currently in the process of getting chemo, which will conclude around 3:30 this afternoon (this includes the rescue agent, Mesna). For the most part, things have gone well. Maggie has responded well by not getting sick and continuing to be her happy, smiley self (as well as not sleeping). We have had one bump however. Friday night Maggie awoke with a wet onesie around the diaper area. After determining that the inside of her diaper was not wet, we called the nurse to help us assess what to do (mind you, Maggie has a catheter and shouldn't be wet). It ended up that Maggie's catheter was leaking around the tubing outside her diaper, so thankfully her catheter was still draining her urine. We "solved" the issue by wrapping gauze around the tubing. This solution didn't last through the day yesterday as the tubing began leaking more. After discussion with nurses and the doctor, we came up with wrapping a diaper around it so as not to have to change it as often. Again, this worked, but the heaviness of the wet diaper would pull at the catheter inside her and cause some pain.
This morning we woke up and to our dismay, the tubing had pulled completely free and was no longer attached. We thought we could salvage the catheter since part of the tube was still inside her, but moments later we noticed that that had fallen out as well. So, until we see the doctor, we are doing constant diaper changes and hoping that her bladder will release urine (and chemo) so as not to irritate her bladder. Since today is the last day of chemo I hope they will allow us to continue diaper changes versus another catheter (I just can't imagine they'd do another catheter though).
On a positive note, we will be going home today (as long as everything goes well) after her chemo is complete and has had time to flush through her body. We just received word that she'll get a blood transfusion before she leaves as her hemoglobin was borderline low. That, plus a couple of preventative medicines will be given before we head for home sometime tonight. We look forward to the comforts of home once again but know that her counts will begin to plummet, which isn't fun.
3 comments:
Andy,
Thought this would be a good place to let you know that I love ya, man. You, Whitnety, and Maggie are in my thoughts.
In other news, I sorely miss having you around to discuss such matters as the manifest destiny of the 1980's Cavaliers, and the mysterious whereabouts of Keon Clark. Man, I had it good with you as my colleague at the RYLM. Life ain't the same man.
Best wishes. And thank you for sharing this blog with us all.
Chris H.
I hope Maggie keeps smiling at home--and also decides it's time to get some sleep. And let the two of you sleep.
You're always in my thoughts and prayers.
Great Aunt Phyllis
She's braver than you think with giant Sesame Street Characters around! We hope that all of you are comfortable and happy to be back home!!!
Love and Blessings,
Melanie
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