Another event that we are not quite successful at yet is the transition to Maggie's big girl bed. Just this past week Maggie has begun to wake up when Andy and I go to bed (we have all been sharing a bed since Maggie's diagnosis). She would then stay up for several hours, just moving around in bed, happy as can be. One night she woke at 12:30 and didn't get back to bed until almost 4:00.
Originally I was going to wait to transition her into her own bed once she was off of TPN because I have to do at least 1-2 diaper changes a night due to the fluids going through her. But after getting such little sleep, we decided to make the switch. Currently, Maggie's naps in her bed and then after about an hour of sleeping, she awakes and becomes upset about her surroundings. When I get her, she than sleeps another hour while I rock her. Baby steps... At night, Maggie is able to sleep in her bed until she awakes and finds we are not there-- which for the first 2 days was about 3 hours in her bed. Last night was an exception that I hope continues, she slept in her bed from 9:45pm to 4:00am. Unfortunately she awoke at 4:00 and decided by 5:00am that she was finished sleeping. Not in this house- we awake when the sun comes up.
So, it's definitely been a rough week of sleeping for us, but I'm hoping that it will get better and that eventually Maggie will become comfortable sleeping by herself without the comfort of Andy and me next to her. I have to say, it's definitely been nice to have my pillow all to myself. She's quite the pillow and bed hog.
A couple more updates... Maggie was able to get a urine sample the big girl way, by going in the potty versus a catheter. The sample showed that she no longer has a UTI. Thank you for your prayers. Also, another little update... I think Maggie's feet is growing as we put her in a new pair of shoes. This is a great change as her feet really haven't grown since she started treatment. She loves her shoes, though they are a bit more bulky and will take some getting use to.
I've posted more pictures...I know, I know MORE pictures? When we get a chance to tape Maggie's walking, we will put it on here. We look forward to the day when we are chasing Maggie. It's within sight, I think. Just like some other big events, like off treatment...
Maggie wanted to practice her walking at Andy's cousin's wedding. She is so proud of herself when she walks, and we are too!
We celebrated Grandpa and Grandma Lehman's 40th wedding anniversary with all the family. Grandma is reading a book to all the cousins.
All smiles!
Maggie has discovered her backpack and likes to have it on throughout the day while pushing her stroller or cart. Though there isn't a picture, she has also been sporting the one glove look for some odd reason. She will either wear one mitten or one purple glove that the hospital staff wears when giving treatments.
Maggie uses her stroller to get around the house. I was in her bedroom the other day, and I heard her pushing along the hallway coming towards me. It's so nice for her to be more mobile, and I think once she is walking on her own she will become even more independent. Nancy thinks that given the progress the last few weeks, Maggie will be able to walk around the house in the next month on her own. We can't wait!
Maybe, just maybe, Maggie will be able to splash around in the fountains at the Greene this summer. Andy and I have been dreaming about that since before Maggie was born.
6 comments:
That sounds like walking to me! Way to go, Maggie!
Congrats Whitney and Andy! What huge 'steps' all around! We are thrilled for you! I love the picture of Maggie in the bathtub! She is SOOOO beautiful! I'm happy to hear about all of her developmental milestones, she's catching up fast! Love you guys! jess
Wonderful news! Go, Maggie!! Don't EVER apologize for posting pictures. We love them all. Cousin Carol
I agree with the comment above...I love the pictures! Keep em' comin'. How wonderful to hear of the milestones with walking. Such a big girl! Will be praying that she continues to transition well to sleepin in her bed.
Maggie I am so proud of you and your progress!! You have shown us all that you are a strong girl who has so much fight in you!! I LOVE your pictures, your smiles, to see you walking!! I am so happy Whit and Andy that you seeing the joyful milestones! Love you all.
Yes, keep the pictures coming. Thankful reminders of what all the pain the three of you have gone through has helped bring about.
Love and prayers always.
Great Aunt Phyllis
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