Thursday, June 3, 2010

Keep Smiling

Just a brief update after visiting the clinic today. First off, let me say that Andy and I felt like today might be the turning point in our life, given that we weren't sure what Dr. French would say about the bump on Maggie's bicep. We were worried all week long, sometimes to the point where we both felt sick to our stomach. Our innocence has been lost since Maggie was diagnosed with cancer and we are all too aware of the scariness when it comes to cancer and relapse.

So, I took Maggie into the clinic and Dr. French and the nurses agreed that what Maggie has on her arm is something within the vein, quite possibly from all the pokes she has received, including a picc line. Maggie also had her counts drawn and they are all very good. This is a relief as he said most often a person would see relapse in the counts. We pray that Maggie's cancer is gone forever and her counts show this each and every month. We are very grateful to God for being faithful. Though we absolutely hate these types of scares, they do remind us that God is near. Thank you all for your prayers as well.

Maggie continues to improve in her leg strength. We are noticing that she is beginning to pull herself up (sometimes with only one leg). She crawled up several stairs tonight, not bearing weight on her right leg, but this is a step in the right direction. The goal now is to give her time to heal while also allowing her to put weight on the leg to give it strength.

Dr. French also took away Maggie's last dose of lasix. This is a big step in the right direction as well. It shows that her body is healing enough to get rid of the fluids versus having medicine do it for her. This also means that we get a break next week and don't have to go to the clinic. Being on lasix has meant weekly electrolyte and weight checks to make sure she is doing okay.

They are also slowly weaning Maggie's formula feeds down. She currently has a 4 hour window when she is not receiving formula and she can go "free." If she is hooked up to her feeds, we normally have to follow her around so as not to allow her "tubie" to get tight and end up coming out (as this has unfortunately happened once before). It gives us all a break. Unfortunately she is not taking much more by mouth, but Dr. French is not surprised. It is going to take time, but hopefully the day will come when Maggie is self-sufficient (and hopefully that day comes soon).

I guess this post ended up being longer than expected, but one thing you can expect, as I alluded to in the last post, is smiling, happy pictures. We have been assured that Maggie is still on the right track and we are relieved and very happy. We can again breathe and enjoy our "normal" life. We look forward to sharing more of our happy little girl. She is such a joy in our lives and we hope she might bring some joy to you as well.

12 comments:

Nicki said...

what a relief ;) I look forward to seeing more pictures of sweet Maggie. I would also love to hear how you are feeling Whitney!

O'Briskie Family said...

(sigh of relief) Great News! Way to go Maggie

Jo-Anne said...

GO MAGGIE GO! We're so excited to see all the happy pictures. You can't help but smile back when you see Maggie smile. Hooray!

Unknown said...

Yippieeeeeeeeeeeeeeeeeeeee!!!

Anonymous said...

Wonderful news....so happy for you all!! Love the pics that you have been posting!! She is an amazing (and adorable) little girl!!!

Jack & Michele Collins
Sarasota, Florida

Anonymous said...

Yes, she is a joy to so many! Thank you for sharing her courageous life with all of us! Prayer is so powerful and it is so obvious to see how it is working in Maggie's life! God bless you all and take care of yourself too Whitney being you are expecting again. : )

Renee said...

So happy to hear your clinic appointment went well on Thursday! It was nice to meet you, however briefly, and be able to put a face with a name :) Praying Maggies leg heals soon so she can show off what all she can do! Enjoy your summer :)
Renee Huffman

Gwen Ernst said...

Have not had much computer time lately to check in on you all, so I was glad to see all the pictures and good reports. Thinking of you often and hoping to be able to get together soon.

Anonymous said...

Praising God for all the wonderful news. Will continue to pray for a complete healing. Give Maggie lots of hugs and kisses.
Love from Tennessee

Anonymous said...

Rest assured that Maggie does bring joy to all who have followed her amazing journey. Will continue to check to see beautiful pictures of Maggie.... So happy she is cancer free. God Bless.
T.

Anonymous said...

The pictures are so great! We are so happy that things are "normal" for you these days. Sure think of you often and wish we could get together!

Love,
Bethany

Anonymous said...

It is good to hear the progress that is happening in your family! You are wonderful people!