Updates

We have continued to enjoy our time at home. Maggie continues to be a happy little girl wanting to go outside whenever possible. Unfortunately, due to the medicine she is on, she is hyper-sensitive to the sun and burns very easily. We lost all of our trees in the backyard either to the wind storm a couple of years ago or to cutting them down so we have no shade in the backyard. This makes it very tough to keep her protected.

Maggie's leg continued to heal and she began putting weight on it last week. She would stand and take a couple of steps. We got her a sand/water table on Sunday and she thoroughly enjoyed standing and taking steps back and forth between the two elements. As I was getting her ready to take a bath, she asked to stand at the tub and as she did so, her leg gave out. She cried similarly to the first time she fractured her leg and so we decided she should go back to the doctor on Tuesday. The x-ray yesterday showed that she did indeed fracture her leg within her existing fracture. It also showed that she had a fracture at the top of her tibia as well, as there was new bone growing. They decided not to cast her (again) because her major problem is osteopenia (bone density). In order to correct it, she needs to be able to put weight on it, as this helps build her bone strength. He also suggested adding calcium and vitamin D to her list of medicines. The poor girl is just so brittle it doesn't take much to break a bone.

We also had a bit of a scare that we are trying to deal with currently. On Thursday, Andy found a bump on Maggie's bicep during her bath. We of course both grew sick with worry. We couldn't rest with this over our heads, so I called my wonderful nurse friend who graciously agreed to see Maggie at 9:00 that night. After she talked with the doctors the next day, they currently are not worried about the description. We try to take comfort in that, but given our situation, we can never feel a complete sense of peace. Maggie goes in to see Dr. French tomorrow for her counts, as well as an anti-pneumonia infusion. Please pray that Maggie's counts still look good and that what is on her arm is harmless. Please...

We try to remain strong, but sometimes the worry is too much. It seems as though we can never completely rest feeling good. There always seems to be something that brings us back to our reality. We pray that we are just being over-anxious and worrisome parents. Again, please say an extra prayer for Maggie that she is completely healed of cancer forever.

We thank you for following along with our journey. We pray that our journey consists of only happy pictures from now on. We pray that our days of becoming "normal" parents and worrying about "normal" worries (Maggie running across the road, touching a hot flame, etc.) will soon be here. We are tired of what we have dealt with and pray daily for complete healing for Maggie. Please continue to pray that with us.

For now, if you look at the next 2 posts, you will see some happy pictures of what we have been doing. Like I said, I hope these pictures will only continue.