Happy Thanksgiving

We have had a wonderful couple of weeks. Maggie has been doing great. She had her monthly clinic visit last week and her counts continue to be great. Dr. French lowered the threshold on her IGG levels (from 700 to 500) and for that reason, we did not have to have an infusion (this helps with immune functioning). They had only good things to say and for that we are thankful.

We also went for a pulmonary visit as well. Her doctor again had great things to say. They will continue with the plan to do a scope, CT scan, and take out her port all at the same time sometime in the spring. We asked about isolation, as we have stayed pretty isolated since coming home from the hospital in May and especially with the holidays coming up. The doctor felt it was still important to do so, saying the longer Maggie can go without a cold, the better she will be at fighting it. For that reason, we will be celebrating Thanksgiving as a family of four rather than with our extended family. This will be a first for us as we've always spent the holidays with our parents, siblings and extended family. Andy is quite excited to make our turkey and fixings, so we'll see how things turn out. While I am sad not to spend the holiday with our family, I have been reminded of how much we have to be thankful for, given that 9 months ago we weren't sure if we'd have Maggie to celebrate with. And now we have another little one, another wonderful blessing.

Have a Happy Thanksgiving!

Halloween

Never did I realize how hard it would be to do much of anything with two little ones. To survive, I find that I need to nap during nap time as our nights are so broken up and sleep is often hard to come by. For this reason, free time is limited and I apologize for a lack of update.

We are all doing very well. Maggie continues to be a good helper. The biggest challenge for us is working with discipline issues with a little girl who has a stubborn, independent personality. We have found that the fight that was within her to live is now an everyday thing. Though it is frustrating, we appreciate her spirit.

Below are pictures from our trick-or-treat night. Maggie walked some, but Andy would carry her to keep up with her friend Jay. She would not speak to anyone, but as soon as she got her candy, she would turn around and say, "Look Mom!" She was pretty happy to get the candy. We went up and down one street and then she was finished. All in all, we had a great night and were so happy to see her walking and having a good time.

Here we are coming back from a house after getting candy. It's too bad so many people had stairs. We are still working on walking up and down stairs.

Our happy little dinosaur walking.