I want to thank you again for all of your prayers. It has been a crazy kind of month with the different ways that we have been tested in regards to Maggie's health. Maggie's numbers all looked good today, including her electrolytes, which I was a bit worried about given her lack of liquids this past week. Everyone worked very quickly to get us in and out. We were there for only 3 1/2 hours. Maggie, however, was very ready to go after about 30 minutes. She normally doesn't mind the clinic, but after being forced to take Tylenol, she was upset and wanted to go home to "play outside." She talked about getting a toy at the clinic for the last couple of days, but even refused that. So, she was a little rough, but we will gladly take a grouchy, healthy Maggie any day.
Thank you again for your prayers. The further we get from the end of treatment, you would think it would get easier, but it hasn't yet. We hope maybe with these good blood counts, we might be able to relax a little. We sure could use a break from worrying.
Monday, March 14, 2011
Sunday, March 13, 2011
Prayers
Maggie has her clinic visit tomorrow. Please keep her in your prayers. We feel that tomorrow is a very important day for us. We believe that Maggie had the flu this past week (I say "believe" because we have never experienced a "normal" illness before, so we aren't entirely sure what to make of things). She vomited several times last Tuesday morning and since then her appetite has been very poor. She has also refused drinking and so we have had very few wet diapers. Today was the first time that we saw better urine output.
With our scare two weeks ago, we are a little frazzled and worry easily. We pray that tomorrow is another good day and that it continues to remind us that Maggie is indeed healed. Please pray for a great clinic appointment and that Maggie is completely healed of cancer. Thank you.
With our scare two weeks ago, we are a little frazzled and worry easily. We pray that tomorrow is another good day and that it continues to remind us that Maggie is indeed healed. Please pray for a great clinic appointment and that Maggie is completely healed of cancer. Thank you.
Tuesday, March 1, 2011
One Rough Week
The past week has been a very rough one for us. It started out last week with Colin going to the doctors with a really bad case of cradle cap and rash. The doctor thought it would ease our (my) worried minds if we did a blood test on him to just show he was okay (given Maggie's history). We didn't want this, but went with it because it would show some allergy issues, which might be the cause of Colin's rash. They drew blood Wednesday at 5:30 and said that we wouldn't hear results until the next morning. The night of waiting reminded us of the weekend of waiting that we did almost 3 years ago. It was torture and it started a whirlwind of memories, fears, worries, etc. The next morning she called and told us there were some numbers that were too high and others that were too low. She wanted to send it over to Maggie's oncologist to have them look it over. Nobody ever wants to hear something like that. Later in the afternoon we got a call from the oncology nurse that the numbers were fine. While the doctor was only thinking she was doing us a favor, it ended up being quite torturous and we just haven't quite recovered from it.
Skip ahead to yesterday, with our nerves already frazzled, I was playing with Maggie and found a bump on the back of her neck. An immediate feeling of sickness came over my body and I immediately called the hem/oc clinic. The nurse I confide in said that it was best if we wait a couple of days to see if it grows or changes. I think one of the most torturous things to do to a parent who has a child with a history of cancer is to make them wait. After awhile I called them back and requested blood counts immediately. They called later and wanted to see Maggie instead, saying that it might not necessarily show up in the counts. Again, a night of waiting, not eating, not sleeping...torture.
We went in to see Dr. French and he labeled it benign, most likely from the eczema on her head, neck, and body. He will take a look at it in two weeks at Maggie's monthly clinic visit, but for now, we need to start eating again.
Worry. That's all I ever do anymore. I just can't get past the worry. I know what I need to do, but it is so hard after all that we've been through. I'm told it's a process, but when moments like the last week that we've had come around, everything resurfaces. My psychologist husband says it's PTSD (post traumatic stress disorder) and Maggie's nurse agrees. What we have been through in the last 2 1/2 years has been so scary (that's putting it kindly) and we are completely frazzled.
We thank you so much for the outpouring support and prayers, and I ask that you continue to pray for Maggie that she will remain cancer-free and healthy. I also ask that you pray for us. We are worn out.
Skip ahead to yesterday, with our nerves already frazzled, I was playing with Maggie and found a bump on the back of her neck. An immediate feeling of sickness came over my body and I immediately called the hem/oc clinic. The nurse I confide in said that it was best if we wait a couple of days to see if it grows or changes. I think one of the most torturous things to do to a parent who has a child with a history of cancer is to make them wait. After awhile I called them back and requested blood counts immediately. They called later and wanted to see Maggie instead, saying that it might not necessarily show up in the counts. Again, a night of waiting, not eating, not sleeping...torture.
We went in to see Dr. French and he labeled it benign, most likely from the eczema on her head, neck, and body. He will take a look at it in two weeks at Maggie's monthly clinic visit, but for now, we need to start eating again.
Worry. That's all I ever do anymore. I just can't get past the worry. I know what I need to do, but it is so hard after all that we've been through. I'm told it's a process, but when moments like the last week that we've had come around, everything resurfaces. My psychologist husband says it's PTSD (post traumatic stress disorder) and Maggie's nurse agrees. What we have been through in the last 2 1/2 years has been so scary (that's putting it kindly) and we are completely frazzled.
We thank you so much for the outpouring support and prayers, and I ask that you continue to pray for Maggie that she will remain cancer-free and healthy. I also ask that you pray for us. We are worn out.
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