Friday, May 29, 2009

Latest results

We found out this week that Maggie's intestinal enzyme levels are normal--so no lactose intolerance or anything else similar.  This was the last bit of information that we were to get from the scopes and biopsies from last week.  Which leaves us quite confused...nothing at all seems to be abnormal.  Diarrhea for 3 months plus, but no obvious source of the problem.

We assume at this point that it is probably just treatment related (from chemo) and that we'll have to wait and hope that it gets better.  Also, her diarrhea picked up again when she was on her limited diet and is now facing another 2 weeks without food by mouth to get things back settled down.  She remains on the formula that is easy to digest, but she's had diarrhea off and on the last 24 hours or so.  We may be looking at a long process of waiting and hoping for improvements.  What is apparent is that Maggie can't tolerate food right now.  The doctors are trying to boost her nourishment over these next two weeks before we try the next thing.  Her stomach is still full of air and looks uncomfortable.

We also continue to hope and pray that Maggie is on track.  Anxiety sneaks up on us sometimes, and that isn't fun.  But we're going to take things a day at a time and hope to see improvements and keep the leukemia from returning.  That is our prayer throughout each day and night.

Continued thanks to everyone who is supporting us in many different ways.  We appreciate it.

3 comments:

Anonymous said...

Well...i know you were hoping for some results, but I guess no news is good news. Hang in there...we will see you next weekend! Hopefully Maggie and Jay will have a pretty day to play together outside.

PS...Jay now has a 'Maggie' doll. He saw the doll at Walmart and picked it up and hugged it...then he looked up and said 'Maggie!' Of course it was too cute not to buy it :) .....Thinking of you guys. jess

Anonymous said...

Well, if it's the chemo that's causing the diarrhea, lets hope that as the chemo is calibrated down, as I assume it will be after the first, most intensive phase which you've just finished, its effects on Maggie's digestive system will wind down as well.

Love and prayers always.

Great Aunt Phyllis

Gwen Ernst said...

Good to see you on Saturday, even if it was briefly. I'm sure that is frusterating not to have any more reasons for all the diarrhea. I will be praying that her little digestive system will be able to tolerate more as time goes by.