One of their bigger concerns is that she's retaining more and more fluids each day. They have taken her off of the paralytic this morning for another drug holiday. They are also going to start feeding her some formula through her feeding tube to try to stimulate her gut and get her to start digesting. This could, in theory, help her to start shedding some of her extra fluids. Dr. Patel thinks this is one of the keys to getting Maggie better.
They've taken Maggie off of her anti-fungal, an antiviral, and I believe one of her antibiotics. She's run a full course of some of these, plus, each medication that goes in is more fluid that she has to get rid of. She is still on 3 or more antibiotics.
It's another important day today.
13 comments:
My thoughts and prayers are continually with all of you. I can't imagine what you are all going through.
Amber
And our prayers continue with you each and every day. If you need anything else, please let us know.
Love you all.
Zeke, Shanda, and the girls.
I love all three of you and am thinking about and praying for you almost constantly.
Alyssa
praying very hard that maggie responds well today. ~mz
Hi Bixler Family!
I been following your story for a few weeks. I learned of you from the Barnetts. Our daughter Julia is now a cancer survivor, and Dr. French (Frenchy or Dr. French Fry, as she calls him) is her doctor. I find myself checking daily on Maggie's progress. I am praying for her recovery. God bless!
Emily Mangual
www.caringbridge.org/visit/juliamangual
What you're going through sure makes me wonder what people do when they don't have Christ to cling to. Thinking of and praying for you constantly.
Good Afternoon Andy & Whitney, <*>Hope you both are doing good with this not so bad news. If the formula helps Maggie's stomach overall and helps her shed some extra fluid...that would be great! <*>I sure PRAISE Maggie's doctor's. It sounds like they are doing a fantastic job!
<*>~Hope~fully~ all these changes will benefit Maggie and start to make her better soon. :)
<*>Have a great day if you both can under your circumstances and we will be praying for precious Maggie24/7 and you both as well.
<*>May God continue to comfort you all and watch over Maggie with His healing and care.
*~*~PLEASE BLOW MAGGIE A GET WELL WISH, LOTS OF PRAYERS, A WARM HUG AND A KISS FOR ME~*~*
~*~*~DON'T STOP BELIEVING~*~*~
*~*~*~*~KEEP THE FAITH~*~*~*~*
~*~*~*~*AND STAY STRONG*~*~*~*~
Warm Hugs~I Love You All :)
Tina and Bill
I pray and hope that all of these changes make Maggie get better and soon. I am sure it is difficult for you to watch her go through this and to not know what will happen next. Both of you, and Maggie, are amazing in that you are holding strong and hanging in there, despite all of this. We will continue to pray for her complete recovery from this current issue, as well as from cancer. We're with you Maggie.
~Janette
Andy & Whitney,
I just wanted to let you know that I've been quietly following Maggie's journey, and that I am lifting all of you up in prayer.
In Christ,
Kendra (Johns)
Dear Maggie and support crew:
I try and try to think of something else I can say that will have the impact and importance of saying what everyone else does that we care and are praying. And there just isn't anything. Sarah said it all when she asked how people experience this kind of medical concern and handle it without Christ. Just try for a few moments to separate your feelings, comforts, and experiences these past 10 days into "With Christ" and "Without". You can't begin to do it because your faith, your rock of your very being is completely entwined with your faith.
I not only go back and read previous blogs to review -- but I also reread the comments you receive. I even have a few favorites that I stand in awe how well they can express their support for you!
So, I have an idea. I've been in ICU situations before waiting with loved ones -- never as long as this. But I remember you lose track of time, the date and the rest of the world. It is really hard to leave the hospital and see the rest of the world is functioning as if NOTHING is wrong when EVERYTHING is wrong.
See if you would feel comfortable to write a letter to Maggie when she reaches her 10th birthday and you take some time to reflect back to your crisis in 2010. What are your most outstanding high points/low points? How important was the blog to providing you support and lifting you up in prayer? What Scripture was special? What songs besides the one you posted? Of course, you can also point out, that back "then" medical treatments for pneumonia and cancer were not nearly as high tech as "now" in 2018. Play around with this thought and think about changing her age -- when she would be older to comprehend how critical she was -- to explain what was happening, even explain that old-fashioned term "cat and mouse", etc.
I will even think outside of the box enough to suggest some year that you write about these experiences -- for a magazine or book. How often have you read how much we all appreciate your honesty, how you explain things so we know exactly how to pray, how you share your inner thoughts, how you update us often? If I did not know you nor see your pictures, I would assume that you were much older and mature in your faith and life.
Does any of that make sense? I just want you to think outside those walls for a moment to remember how far you too have come -- not just Maggie. Many have said that you are so brave, etc. But you silently ask: "What choice do we have?" So you keep on. Please allow some down time for tears -- they are very therapeutic.
I talked to my friend who had H1N1 and she explained that she did have ARDS also (she had originally said she didn't) -- but didn't know it. She explained how she remembers very little of those weeks -- of pain, etc. She suffers none of the side effects from the paralytic that were originally posted on her blog of what to expect. That is very comforting to me that Maggie won't have to deal with memories of how sick she was.
I pray for angels' wings to surround and uplift Maggie before the Lord for the protection needed as she nears that corner and TURNS the corner when we will all shout: PTL!
Someone said in a post that each moment that Maggie hangs on is a moment of hope and a moment when she can be getting better. That post meant a lot to me, and I hope it helped you. I'd like to add another line. Each moment that little Maggie hangs on is a moment of THANKFULNESS that she's still with us and fighting to get better. Oh, I wish God would do a SPECTACULAR miracle and make Maggie better RIGHT NOW! That would be glorious! But I am so thankful for the continuing miracles that have kept her here and fighting. I pray God continues to breathe healing into Maggie and to breathe hope and encouragement into her mommy & daddy and all her family. Love from Cousin Carol
Continued prayers from Toledo! God'strength & undergirding be with you & His healing power flowing through Maggie.
Still praying in Tennessee for Maggie and you. Hang in there and know that God is with you all the time.
Bruce & Rita
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