Another piece of information we received today was Maggie's weight. They changed her bed this evening to a bed with a scale and she currently weighs 38 pounds. She has gained about 11 pounds of fluid in the last week plus-- over 4 liters. This is very obvious by Maggie's swelling, but it came as a shock to me.
Not much has changed for us today. We continue to walk that plateau waiting for Maggie to turn around. Her CO2 continues to be high at 76, but her PH is within reason at 7.27. Her blood oxygen level has slowly come up this evening to 80. The respiratory therapists are having to put a very difficult puzzle together, trying to come up with the correct settings to bring Maggie's oxygen up and her CO2 down. They have been unsuccessful thus far. Maggie, as they say, is not cooperating.
At first it was kind of a joke-- Maggie always going against the norm. First, she takes a chemo drug that should cause constipation, but in her, diarrhea. Now, her responses to the ventilator settings are not typical. Ha, ha, funny. But seriously, we're over it. It would be really nice if Maggie would start performing the way they would like. It's a bit disheartening when you see them shake their head as they try to "fit the pieces together."
The stress is taking years off of our life. We have been dealing with high stress all the time for 11 days now, with little reprieve. How long before your body shuts down? The emotions of the past few weeks in itself are tiring. We are so ready to see some good news, to hear some encouraging signs, to "turn the corner." An RT told me yesterday that what we are doing is basically watching grass grow. It is a very slow process, but when it starts growing, soon enough we'll have to cut it. I don't care about the slow process as long as I know that I get my baby back when we're all done. All I want to do is to be able to hear her voice again, to have her ask me to "hold you." I want to be able to see her smile. We have been fighting cancer for 20 months and I refuse to let Maggie go due to this bout. We've fought too hard, she's fought too hard. We want to take her home with us and I refuse to leave this hospital without her.
We thank you so much for the support that we have received from everyone. We wouldn't be here without it. Please, continue to pray for Maggie. It's because of your prayers that we are still here.
29 comments:
Praying for you tonight -- that you all might get some GOOD rest and that Maggie will be turning the corner soon!
~Hannah
It's my prayer that she will make this turn soon. She's fighting and we are all praying, hoping, pleading for her to come out of this quickly. Surely it feels that you are on the edge of a cliff, just one day at a time, one moment at a time. I know it's impossible, but try to rest, she knows you are there.
I missed you all today, but prayed for you constantly. See you tomorrow. jess
You guys are in our prayers tonight and always! We just know that Maggie will turn the corner soon!
Love,
Bethany
We're continuing to pray for you here. Maggie is on our church's prayer list, as well as my Bible study's prayer list. Praying for for her healing, wisdom for the doctors, peace and strength for you.
Julie Stewart
Maggie is in our prayers constantly and we have petitioned God so many times in the past two weeks. There are so many people praying for her and for the two of you. Just take care of yourselves. We love you all.
Zeke, Shanda and the girls.
I check in on your blog several times a day, everyday, hoping to see you say that Maggie has turned the corner. I pray that happens for everyone's sake, soon. I have no idea how you are doing this--I can't even imagine how hard it would be. But, I know through my sister Janel, that you just do it. Go Maggie go, you have fought so hard so many times and you just keep on fighting! I pray the doctors will figure out all the answers they need to get all her levels to where they need to be. I hope you all have a good night.
I hope you get that one piece of information tomorrow that helps you and Maggie turn that corner. You so need that and deserve it. I too check for updates all day long. I actually just leave it open on the computer and hit refresh. Always thinking of Maggie and especially the two of you. I don't know how you do it. I wish I could help in some way.
My prayers for a gopod night and some answers in the morning are with you. eep the faih. Cousin Ruth Ann in Florida
I do have some understanding of how tired you are. It is indeed such a very grueling procss. Not a bit like watching grass grow...which seems a very placid situation. I can't imagine that is what you all feel. Just keep hanging on to the fact that she is still right there with you, and there is still much, much HOPE that she is going to pull through this thing. When you get to the end of your rope, tie a know and hang on. That was an image that helped me when things were the bleakest for Liddy.
Love and prayers,
Monica Miyashita, Mama to ^Liddy^, now watching over Maggie
Praying for Maggie to keep fighting and turn that corner. Also remembering you and Andy. Asking God to give you strength and peace.
Jack & Michele Collins
Sarasota, Florida
Praying for Maggie to have a good night and for renewed strength to keep on fighting. Praying for a restful night for Maggie's mommy and daddy and for good news in the morning. Cousin Carol in Lakeland
DEAR ANDY & WHITNEY AND MAGGIE,
I RECEIVED A LOVELY E-MAIL FROM AN OLD CLASSMATE THAT I HAVE NOT SEEN SINCE HIGH SCHOOL. HE IS MY FRIEND ON FACEBOOK AND HE IS NOW FOLLOWING MAGGIE'S BLOG.
HE HAS SENT OUT MANY, MANY AWESOME E-MAILS EXPLAINING MAGGIE'S SITUATION AND YOUR'S AS PARENTS AND THE STRUGGLES YOU ARE GOING THROUGH. HE SENT E-MAILS TO HIS FRIENDS, FAMILY, PASTORS AND ETC. HE IS ALSO PRAYING VERY HARD FOR MAGGIE TO PULL THROUGH THIS.
I AM JUST AMAZED AT HOW MANY FOLLOWERS I HAVE FROM SCHOOL THAT REALLY TRUELY CARE ABOUT MAGGIE'S HEALING AND YOU BOTH AS WELL.
I have been pleading to God to lift Maggie up in prayer and for Him to just show some kind of improvement to her...and SOON.
Dear God, Please, please give Andy & Whitney the strength and courage to continue this TOUGH JOURNEY that they are on. May they soon find peace and comfort down this bumpy road. Please give their weary bodies fresh energy so they can be strong again to face whatever is next. And to be there for their precious daughter Maggie. AMEN
Love & Warm Hugs To All Of You!!!
Tina and Bill and Everyone who is following along with me.
Praying continually for Maggie and praying that your hearts will be encouraged and uplifted.
The Mussers
My prayer today too is for the two of you to stay stong and DO NOT GET discouraged....I know that is so hard to do. Actually I have no idea - but Maggie needs the two of you as much as she needs the doctors and nurses! She will ask you to hold her again! I know it!
Hi..I don't know you guys personally but came across your blog last week and have been praying for your beautiful little girl ever since. I have a 19 month old Maggie who has a rare bone marrow disease and I know how hard it is to have to watch and not be able to do anything to help your little one. Praying that Maggie gets well soon so you can all be back home.
Praying, Whitney. We love you.
Elisha
Dear Andy and Whitney
We continue to follow you guys faithfully and can't wait till Maggie turns that corner for the good. We are praying faithfully for her as well as you guys. We can't imagine what a difficult time this has been for you both. Maggie is a strong little girl, and a fighter. She has proven that over and over to all of us. She will overcome this. Wish we could do more for you guys. Kirk and Jenee Hilty
When you think you cannot do this another minute, and you ask the question..'How long can we continue on like this?'...the answer will always be the same...."As long as you need to...as long as she needs you..you will find the strength."
Peace,
Genia
Andy and Whitney,
We can't even begin to imagine how you are feeling. You have both been so strong. We pray that Maggie will start to turn that corner and that one of these days you will be able to hear her voice and hold her again.
Love Always,
Nat and Andy
i agree with the comment above-i believe that Maggie will ask you to hold her again!! Sending lots of prayers and positive energy to Maggie today. ~mz
Thank you for being honest and "real" in your posts. Although we cannot truly understand what you are going through, it does help us to know how to pray. And that is what we will all continue to do! Sending love to you all!
Praying earnestly for Maggie's healing and for God to give you strength for the next step, peace for the next moment, and hope for the future.
"For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
This is the verse we turned to often when Karrie was going through treatment, (and even now as we pray daily that it won't come back.) May it give you just what you need to keep going...for Maggie and as a testimony to God's faithfulness.
Maggie's unpredictable reactions to her meds and ventilator are her continued determination and it keeps her fighting. Her mind and body have a strong will and just hope Mom and Dad continue to have the same. Think of you daily and our family keeps in touch with each other because of the blog. Please know that we care deeply for you all, and may you continue to feel this love. Love to you all from your Auntie in Illinois.
We are continually praying for Maggie and you guys.
Jared and Susan Luginbill
Dear Maggie, Andy, and Whitney,
While I cannot really understand what you are going through right now, I want you to know that we (all of your supporters) are with you. The visual I have of this is an uphill battle - it can be exhausting and may feel like its getting nowhere fast no matter how much energy you are exerting. So, yes, you may grow tired, exhausted, drained, confused, etc. How could you not? After all, you are human. Please know though that we are here on the sidelines cheering you on, but also supporting you when you need it, as you continue to climb and battle. When all your strength is gone, you can count on ours. We are here (many of us) to help you move forward, even when your body and mind feel like shutting down. Please lean on us when you need to - we are with you. Hopefully, this can give you some time to renew your energy and strength and spirit. I continue to pray and remain hopeful for a full recovery!
Dear Whitney and Andy,
We are praying with all of our hearts that your darling girl is healed, both of this pneumonia and of the Cancer. You're such strong and incredible parents, only the Lord knows the pain that you're going through right now. We pray that Maggie will be back in your arms, laughing and talking very soon. God bless you all.
Christina
I'm praying for your sweet baby girl.
Please try this! When I was infertile, age 40, after two unsuccessful IVF's I got down on my knees and prayed St. Jude's Novena. It goes like this...May the sacred Heart of Jesus Christ be adored, glorified, loved and preserved throughout this world, now and forever, Lord, Jesus Christ pray for us, St. Jude, worker of miracles, pray for us, St. Jude, help of the hopeless, pray for us. Repeat this 9 times a day for 9 days then ask Jesus for your miracle. You MUST believe it will happen. Its never been known to fail. You must promise to publish the prayer and your intials after you've received your miracle. Please try it! I had my baby right after my 41st birthday! Melissa
Praying for you guys. Praying for a miracle for little Maggie. Although I don't know you personally, the story breaks my heart. I can't imagine how, as a parent, this makes you feel. Keep fighting! Keep praying! I will pray for you guys all.
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