Several hours later the procedure is done, and Maggie is stable for now. In the leadup to the procedure and during, she lost all of her original blood and now has blood entirely from the transfusions.
They found a huge blood clot in the upper part of her stomach and it filled roughly half of her stomach. When they got rid of the clot, they found some seeping "superficial ulcers" that were causing the bleeding. They fried them all (cauterized) and watched to be sure that nothing else was bleeding. Last night, the bleeding was attributed to esophogeal varices, which are essentially blood vessels in her throat that swelled and burst. The cause of these are when the liver is scarred and damaged, blood is redirected away from the liver and it goes through the esophogus to get to the heart. The vessels in the esophogus then get overwhelmed and swell. Then they can bleed. That is why we are in Cinci, as continued bleeds require more care than what Dayton can provide. The scope today did not reveal the varices, so we don't know if those are going to be an ongoing issue or not. If so, those are a chronic and serious issue that we would have to treat through surgeries when Maggie is recovered. If the problem is just the ulcers and a generally raw stomach and esophogus, then those can recover and not be a long-term problem.
The plan now is to not stick any tubes down her throat, which they had been doing to suction and detect bleeds. However, they are causing more harm than good and have initiated some of the bleeds. She is on high doses of antacids and they are hopeful that she will heal and not have any more issues with bleeding. If she does bleed more, they know what to look for, what to do, and how to manage the problem. We just need to ensure that they have lots of blood at the ready.
Maggie is definitely dealing with another infection, and that is dangerous as well--but not related to her gastro-intestinal bleeds. If that can be resolved, the bleeding issue controlled and healed, and if her lungs continue to trend toward recovery, we have a real shot of taking her home at the end of this nightmare. That is the plan for now. As we have learned, we don't know what tonight or tomorrow brings. Hopefully a calm night and some progress. We are exhausted, traumitized by what we've seen, and desperate for the rollercoaster to settle down a bit.
Thanks for the prayers. We have needed them and will continue to in the coming days.
45 comments:
Thank you for the update. We are with you all the way and send you lots of love.
Dallas and Judith
thank you for update. maggie is so very brave-just like you both. my thoughts and prayrers with you always~mz
So glad to hear she is stable now. How traumatizing that must have been. She is a fighter though, wow. I've been meaning to go out and donate blood for a while now, and after hearing about all the blood she used I know now that I really have to get out and do that. Continued prayers heading your way for things to calm down and Maggie to heal!
Glad to hear the update. We are praying for a peaceful night, with the bleeding under control. Love you all. Jess
Amen!
I will pray that that the rollercoaster has reached it's high point and you are coming down the other side for a steady, calm
lesss frightening week!
Susan D,
So many people are praying for all three of you especially for total healing for Maggie! The nightmare you describe is truly unimaginable. I truly pray that the days ahead are filled with stability and steady progress to toward full recovery!
Will continue to pray!
deborah
My name is Melanie Bittinger, and I'm friends with Stacey. She's my daughter's wonderful tutor. She has been sharing updates on Maggie and prayer requests. I decided to get on the blog and let you know that my heart is reaching out to Maggie and her wonderful parents and family with love and prayers.
Wow! You are in our thoughts and prayers every day. We are with you Maggie.
~Janette
Very glad to hear that she's stable now. My prayers will continue to be with her, and both of you, through this ordeal.
Dear God - This is enough suffering and pain. Please heal Maggie and give her Mommy and Daddy strength to go through this. Thank you for Dr's who know how to help. Amen.
I have not ventured far from your blog today and honestly dont have words for this nightmare. I can't imagine what you have seen, felt, and still feel. Your little Maggie has been through so much. We are praying so hard, constantly, and without end. Wrapping my arms around you and your family. May you rest well tonight.
praying for Maggie here in Michigan
We are praying for Maggie and for God to give you strength..You all have been through so much and my hope and prayer ia that you bring that precious girl home soon.
The O'dells
Michael, Cathy, Amanda, Jared
We continue to send our prayers your way. You're a strong little lady Maggie - keep up the fight. Do me a favor and tell your Mommy and Daddy we are thinking of them.
Sounds like you have a wise medical team. Keep the faith, feel His love and know that God is listening to all our prayers.
Praying for Maggie's healing and a restful night for everyone.
Thank you, God, for knowledgeable doctors, effective medicine and strength for everyone involved. Please continue to bless the people and the medicine and the entire situation. Please heal Maggie.
Love to you all!
Debbie M.
Praise God! Continued thoughts and praers for you!
Love,
The Miyashitas
Monica Mark Max and ^Liddy^, watching over sweet Maggie
Continuing to lift you up in prayer. May you have a restful nights sleep.
Cecily
We are hoping and praying.
Ryan and Andrea
Just took a small breath of relief, have been praying all day/night and will keep them going. God bless little Maggie and both of you.
Praying for you all to have a much needed restful night, and continued progress towards healing.
Jack & Michele Collins
Thank God Maggie is now stable! Wow, what a fighter Maggie is; she's awesome! Mom & Dad, too! Both your resilience, and your display of faith is truly incredible. We pray for a peaceful night, stability, healing, that Maggie WILL be a survivor, and that you all will continue to be examples for others to follow.
Praying for God's mercy, healing, grace, and comfort,
The Shinkles,
Stan & Janet
What incredible strength you must have, and your precious child has that same strength and fight in her as well! So thankful her procedure provided more answers than questions!
We will continue lifting your family in our prayers! May the Lord guide your thoughts, begin to heal your broken and questioning hearts throughout this ordeal, provide rest to your weary souls, and of course, continue to work in little Maggie's body!
Praying,
Travis & Faith Gingerich
We are so glad that Maggie is stable and pray for a peaceful night. You are in our prayers everyday.
Dean & Jane
Hoping that this is the beginning of her complete healing. It sounds like they know what they are doing and God is working through them. Keep strong and keep the faith. She is a fighter and so are you.
Thank you so much for updating as you can despite the change in location and moving from all that was familar. We know how hard that is and how abruptly it can happen. Continuing to pray for Maggie to be healed and for your strength! Thank you for continuing to hope. Don't give up! God is working through those doctors.
Dick and I have been praying and checking the blog all day. It is wonderful news that Maggie is stable right now. Everyone is thinking of you and praying so hard for strength and healing for Maggie and both of you. At least when Maggie recovers she won't remember this unimaginably difficult journey. Please give your parents our best and know that they are also included in all our prayers. Pam and Dick
Continuing to pray with and for you and little Maggie as you continue the rollercoaster ride. My thoughts are never far from you or your precious little girl.
-Erlina Mae
Maggie is such a fighter. Be strong and remember those baby steps. Sorry I missed you thursday. You are all in our thoughts and prayers. Hope to see you soon. Kim
D0 you guys need blood or platelets donated in Maggie's name. I am planning on giving on Monday. If so, let Zeke and Shanda know and they can give me the details. Will keep praying.
Bruce
Continued prayers for Maggie (and entire family) here in Somerdale.
I am at a loss for words, but just wanted to let you know that my thoughts are prayers are with you and Maggie.
April
THANK GOD ANDY AND WHITNEY THAT SWEET MAGGIE IS STABLE. WE KEPT CHECKING MAGGIE'S BLOG TODAY AND WAS PRAYING STEADILY TO SOON SEE AN UPDATE FROM YOU BOTH. WE KNOW IN OUR HEARTS THAT GOD IS NO DOUBT ANSWERING SO MANY PRAYERS FOR MAGGIE AND YOU BOTH.
WE ARE SO THANKFUL THAT THERE WERE STILL OPTIONS FOR MAGGIE. WHEN DAYTON KNEW THAT PRECIOUS MAGGIE NEEDED MORE CLOSER MONITORING...WE ARE SO GLAD THAT CINCINATTI CHILDREN'S WASN'T TO FAR AWAY.
SO SORRY THAT YOU THREE AND YOUR FAMILIES HAD TO BE UPROOTED TO A WHOLE DIFFERENT PLACE, BUT IF THIS IS WHAT MAGGIE NEEDS TO STAY ALIVE AND HEAL...WE ARE SO BLESSED FOR CINCINATTI CHILDREN'S HOSPITAL.
I JUST INVITED 112 OF MY FACEBOOK FRIENDS TO JOIN IN ON MAGGIE'S FB PAGE OR AT LEAST PRAY FOR HER. WORD IS GETTING OUT FAST. I KEEP GETTING LETTERS AND E-MAILS FROM FRIENDS ASKING ABOUT HOW MAGGIE IS DOING. I AM JUST OVERWHELMED AT THE SUPPORT, IT IS GREAT!!!
WE HAVE PRAYED ALL DAY FOR THIS AWFUL NIGHTMARE TO END FOR MAGGIE AND FOR YOU BOTH TO BE ABLE TO TAKE YOUR PRECIOUS MAGGIE HOME REAL SOON AND FOR HER TO BE AS HEALTHLY AS SHE CAN BE!
AND MAY GOD SOON ANSWER YOUR PRAYERS WHEN THE DAY MAGGIE STANDS AT BOTH OF YOUR FEET AND PATS YOU ON THE LEGS AND LOOKS UP AT YOU AND SAYS "HOLD YOU". I WILL NEVER FORGET THE DAY YOU WROTE THAT...IT WILL STICK IN MY MIND ALWAYS AND FOREVER!
WE HOPE AND PRAY THAT YOU BOTH CAN GET SOME MUCH NEEDED REST AND SLEEP AND THAT GOD TOUCH MAGGIE WITH HIS AWESOME HEALING POWERS AND CONTINUE TO LIFT HER UP IN PRAYER AND SHINE HIS LIGHT ON HER.
MAY GOD CONTINUE TO WALK BESIDE YOU DURING THIS TOUGH JOURNEY AND GIVE YOU THE STRENGTH TO CONTINUE ON TO THE NEXT DAY. AND MAY HE WRAP HIS ARMS AROUND ALL OF YOU AND COMFORT YOU AND KEEP YOU.
*~*~*DON'T STOP BELIEVING*~*~*
*~*~*~*~KEEP THE FAITH~*~*~*~*
SLEEP TIGHT LITTLE SUNSHINE AND LOTS OF SWEET DREAMS WITH AN UNEVENTFUL NIGHT. YOU ARE DADDY AND MOMMY'S LITTLE ANGEL FOREVER!
~WARM HUGS AND MUCH LOVE~ TINA AND BILL AND EVERYONE WHO IS FOLLOWING ALONG WITH US
Thinking about you and praying for you constantly. Hoping for some good news soon to get you through all of this.
Thank God for all that He is doing.Praying for Maggie to be heal and asking Jesus to give you
strength. Knowing that all the prayers is why we still have Maggie. Please God Heal this baby
girl in Jesus Name we pray.
Praise the Lord. Our continued prayers are with you Whitney and Andy. My heart aches for you...the unknown is so stressful! Praying that you had a restful night and now a quiet day.
Jolene Ricer
Continuing to pray for all of you-we love you!
Elisha
We love you, Maggie. Praising God that you are stable and pleading with Him that you only get better and better!
I can't even begin to understand the pain you and your family are going through, I do know the pain of having a loved one going through a big fight since I just lost my dad unexpectedly 12 hours after having my baby. God is a mighty God and a God of miracles and healing. Surrender all your fears pain and Maggie to God. She will be healed.
Thank you for the update. I hope you had a calm night and sweet Maggie is still doing ok.
Praying for this Saturday to be a day of strength and healing. Continuing to seek Godly healing for you all.
Hang in there guys. You are in an amazing place! We hope you guys get out of the PICU soon. Nan and I will stop by when we come for his infusion on Friday. Let us know if you need anything. Nan's on my lap now and he said "get better Mag" Continued prayers.
Love,
Jason, Sara and Nan.
You are all still in my prayers... I hope she makes it through this trial very soon! Let us know at Children's if you need anything!
I'm praying for you daugther Maggie! May God bring about devine healing over her body in Jesus name! Amen.
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