Monday, March 15, 2010

Update

We have survived so far today without a bleed. We had a scare this evening when her heart rate went up, but it seems to be due to her diuretic, not a bleed. We (and the staff) are walking on eggshells, worried that she'll bleed again. But thus far, we've made it.

The staff has also come up with a plan for the next bleed, if there is one. They will scope her, just like usual. The senior GI doc will be there and will use a different cauterizing technique than last time (argon laser) and see if that looks promising. If they aren't satisfied with that, she will be sent to surgery immediately. The surgery team is ready for her, if needed. Based on the location of the ulcers, the plan would be to remove the affected portion of the stomach. However, they are located in a part of her stomach that would require them to take at least 75% of her stomach, if not more.

The hope is 1) that she avoid bleeds altogether (but they aren't counting on that), and 2) that the scope would sufficiently treat her if she does bleed again. Surgery is only a backup plan. Though it would take care of the bleeding risk, the procedure and recovery would present a lot of other concerns.

We need more time, more stability, no more bleeds, and to continue to pull fluids off of her to allow her lungs to function better.

This all feels a bit like a tightrope act; high stakes, high risk, and very high reward if we save Maggie.

If you pray, pray for Maggie's stomach to heal without further bleeds, for her lungs to improve, and for no more complications. Thank you.

30 comments:

Shannon said...

I am praying so hard for little Maggie and you both.

Anonymous said...

We continue to pray and to lift Maggie up to God to heal! We love all of you.

Z

Anonymous said...

I am on my knees in prayer for Maggie. Thank you for the update. You and Andy are amazing parents. Maggie is blessed to have you! I pray for a restful night.
Love you,
Sue Archer

Lauren and Matt said...

I've been praying for Maggie every chance I get. My thoughts are with you all during this difficult time.

Debbie said...

My prayers are continual....for you all.

Debbie M.

O'Briskie Family said...

Thank you for the update. i have been praying for her doctors all day. what an exhausting day, but at least not eventful with emergencies. prayers, hugs, and rest for the night for all of you!

Anonymous said...

Andy & Whitney,
Maggie is always in our thoughts & prayers. We're praying that she doesn't need surgery & no longer bleeds so doctors can focus on getting the fluid off her tiny body & help her lungs heal. We miss you all and pray for your strength. Love, The Hammetts.

Anonymous said...

My family is praying specifically for you. We sure do miss you at the ELLS meetings. -Tricia

Anonymous said...

I promise....The prayers will continue. Wishing you a peaceful uneventful night.

T.

Anonymous said...

There is no "if you pray"...we are all praying without ceasing! thanks for keeping us updated!
Love from Dalton

Anonymous said...

There is no "if you pray"...we are all praying without ceasing! thanks for keeping us updated!
Love from Dalton

Anonymous said...

My husband and I go to church with Zeke we just wanted you to know everyone is in our prayers. I'm so sorry for what you are dealing with. We can only turn to God and keep praying that Maggie is able to make it through all this. Stay strong - we are all praying and pulling for her! Steve & Lori Sharp

Anonymous said...

I will be praying that Maggie's stomach will be healed and also her lungs as well as no further complications.My words of encouragement for you come from Psalms. First,31:24, "Be strong and let your heart take courage, all you who fear the Lord." and then115:1, "Not to us, O LORD, not to us, but to your name give glory, for the sake of your steadfast love and your faithfulness." and last, my prayer for you three, 115:13&14. " he will bless those who fear the LORD, both the small and the great. May the LORD give you increase, you and your children!" Get a good nights rest knowing we are all praying for you and you are in God's hands. Love, Cousin Ruth Ann

Anonymous said...

Absolutely continuing to pray for strength, healing, and peace. ~mz

~Tina Miller~ said...

Dear Andy and Whitney
So sorry I did not comment on your last BLOG titled "Bleed"! I read it 4 times and tried to comment and just started crying. I NEVER have stopped praying for Maggie or you both and I don't want you to think that I have stopped praying for you three! With all the BLOGS you have posted that one was probably one of the most touching and heartwrenching to me.

I keep asking God why do these >>>>>DARK UGLY STORM CLOUDS<<<<<
have to keep lingering over precious Maggie. And why can't He just make them go away and start showing Maggie some healing and take away her hurt and pain!

We are praying hard for no more bleeds. We're so sorry you guys and the staff are walking on eggshells with worries of another bleed. But just remember that they are prepared with a couple of plans if something was to arise. It sounds like you are in great hands with many specialists.

Your precious Maggie is a little fighter and we will continue to pray for Maggie's stomach to heal without further bleeds, for her lungs to improve and for no more complications.

May God continue to lift Maggie up in prayer and heal her little body. We are also asking God to continue to give you both the strength and courage you need especially at this difficult time in your lives right now.

*~Don't Stop Believing~*
~*~*Keep The Faith~*~*~
*~*~*~Stay Strong~*~*~*

Warm Hugs with LOTS OF PRAYERS!!!
Blow Maggie A Hug, Get Well Wish And A Kiss For Us!

We Love You All, Tina and Bill and Everyone who is following along with us

Anonymous said...

I go to church with Zeke. We are continually praying for you and your family. Stay strong, and stay on your knees.

Anonymous said...

So thankful for no more bleeds yesterday and praying that there will be no more bleeds today. Each time I check this blog, first thing in the AM and all day, and I see that Maggie is still fighting, my heart says "thank you, God" and I pray that He keeps pouring strength into your little one and into you. In the words of my favorite hymn, "...morning by morning new mercies I see. All I have needed Thy hand hath provided. Great is Thy faithfulness, Lord, unto me." He IS faithful. He SO loves you and your little Maggie . He WILL continue to uphold you all. Praying for a good day today, a day in which Maggie can make progress towards getting better. Love, Couson Carol

Anonymous said...

I have been praying for Maggie, you both, and all the doctors as I was up throughout the night. She is such a fighter! Keep praying!

Love,
Bethany

Anonymous said...

Praying for all of you throughout the day and night. Continue to trust in the Lord.
Cecily

Anonymous said...

Praying for all of you,and will continue to pray. I am so sorry for all that Maggie has gone through.Sending you all Love and Prayers. Zeke's Mother-in-Law

Michele said...

Happy to hear you made it through the day with no more bleeds. We will pray for it to stay this way. Hope you all had a restful night, and we will pray for continued healing today.

Jack & Michele Collins

Susan DiGiorgio said...

My prayers continue. I went to sleep with Maggie on my mind and woke up first thinking of Maggie. So many of us are unified in prayer for Maggie's healing. God bless! We pray for a day of healing!
Susan

Amy G said...

I agree. There are so many people unified in prayer for this precious little girl... people who know her personally and people like me who don't but pray multiple times a day for healing for her. I pray you feel God's touch on you and your precious daughter.

Anonymous said...

Many many thoughts and prayers go out to your family and for Maggie. God Bless you all!!

Anonymous said...

I am so glad you are at Cinci's Childrens and I feel the best will be done for Maggie. You are all still on my mind and in my heart everyday. My love to you all from Illinois Auntie.

Anonymous said...

Thinking of you both and Maggie day and night. Maggie is a fighter. Stay strong!
Jennifer

E said...

Still praying! Hugs!
Elisha

Anonymous said...

Dear Maggie,
You have been on my mind every day, although I have not been able to stay in touch via blog comments these past few days. I continue to pray for your well-being and for your parents. As your parents requested, we pray that your stomach heals without further bleeds, that your lungs improve, and that there are no more complications. Near and far away, we are with you Maggie.
~Janette

Lydia said...

We all continue to pray for complete healing for sweet Maggie. I pray you are hanging in there and continue to have hope and faith that Maggie will pull through all these horrible trails. I hold all three of you up to our Almighty God...who can give you stength for the rest of the way. All my love goes out to you.
Lydia

Unknown said...

Prayers coming your way, of course..that's a given. In addition to that, if there is anything I could do to make your stay at CCHMC more comfortable, do not hesitate to call. This means: fresh pillows, dinner, lunch, a non-hospital blanket, cards, anything distracting, books, comfy clothes, pop that isn't gift-shop/vending-priced, snacks, movies...I know those things are small and don't help the bigger picture, but sometimes the small things bring the smallest comfort. Again, please don't hesitate to call.--
Michelle Maegly